Lyme Disease Halifax

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http://youtu.be/DpH_410Ghdk

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Help bring Lyme research to new levels.

With today’s technology and knowledge we are lightyears ahead of just one decade ago. It is time for aggressive human tissue/fluid study, both live subject and post mortem.

No longer should we simply throw away tissues in any surgery people with and many other conditions. We want to thoroughly explore just how prevalent borreliosis is in the human population and we can do it now.
Register (very easy) and vote each day now until Dec. 12 to get us to the finals!!

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Well over 1 million Canadians suffer from chronic illnesses such as myalgic encephalomyelitis (also known as chronic fatigue syndrome), fibromyalgia, multiple chemical sensitivities and Lyme disease. Currently these diseases do not get the required attention by our health care system. Moreover, research in these fields lacks greatly.

A new Complex Chronic Diseases Clinic will open in 2013 in Vancouver to address these diseases, research them and provide the support that its sufferers deserve.

Through this project, we want to help fund medical equipment needed in order to properly diagnose these patients, and acquire essential equipment in order to conduct proper research.

Here is the equipment that is currently most needed, identified by the administrators of this clinic:

Ongoing research in the future
-minus 80 degree Celsius upright freezer to store future patient samples for ongoing research in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Lyme disease and Fibromyalgia
-refrigerated centrifuge to spin down the samples
-software system to track the patient samples and a label producing machine to track the samples in the freezer.

 No one is immune to these diseases in Canada. They happen to men, women and children. Moreover, many of the current patients are disabled, housebound and bedridden. This clinic in Vancouver represent hope for a better future.

A Close Up Of An Adult Female, An Adult Male, Nymph And Larva Tick Is Shown June 15, 2001. Ticks Cause An Acute Inflammatory Disease Characterized By Skin Changes, Joint Inflammation, And Flu-Like Symptoms Called Lyme Disease. Photograph by Stock

BY GWEN BARLEE, TIMES COLONIST JULY 5, 2012 Two weeks ago, something remarkable happened. Dr. Robbin Lindsay, a research scientist with the Public Health Agency of Canada, said he feared a “disease explosion” in regards to Lyme disease, a serious tick-borne infection now found throughout southern Canada.

Climate change has created more hospitable habitat for ticks that carry Lyme disease and, increasingly, infected ticks are found in higher numbers and in areas they weren’t found before.

Lyme disease is a serious infection. If a person bitten by an infected tick is treated promptly and robustly with antibiotics, the disease can be stopped in its tracks. However, if the disease is left untreated or misdiagnosed, the bacteria moves quickly out of the bloodstream into joints, cartilage and even into the brain, becoming an entrenched infection that can leave people in wheelchairs.

Lyme disease is known as the “great imitator” because it is a multi-system infection that mimics other chronic diseases like multiple sclerosis, chronic fatigue, rheumatoid arthritis and even deadly Lou Gehrig’s disease. It is problematic to diagnose – the standard blood tests in Canada are notoriously unreliable. Matters are further complicated by the fact that many medical practitioners in Canada still believe Lyme disease is a rare and easy-to-treat condition.

Although the disease has exploded in the United States over the past 20 years, culminating in more than 30,000 diagnosed or suspected cases in 2010, here in Canada, where infected ticks seem to stop at the border, only 150 cases are diagnosed annually. Lack of medical knowledge, combined with inaccurate blood tests, has resulted in misdiagnosis and forced many infected Canadians to go south of the border and pay for medical treatment they should be able to get in Canada.

See full link:

http://www.vancouversun.com/touch/health/story.html?id=6887899

Same thing going on in the East. Let the FOIPOP’s start raining down. West to East same BS !!

BY STEPHEN HUME, VANCOUVER SUN JUNE 6, 2012 The provincial government routinely fails its legal duty to promptly inform citizens of risks to public health and safety, warn legal scholars at the University of Victoria.

Failures to disclose include air pollution, deteriorating infrastructure, parasite infestations, contaminated water and disease risk. Relevant information has been withheld from potential victims, scientists and the media – in some cases for almost a decade, says the university’s Environmental Law Clinic following a study of six cases across B.C.

On Tuesday, the group asked the province’s information and privacy commissioner for a full investigation into what it says appears to be “an ongoing system-wide failure” by government to disclose in timely fashion information with clear public safety implications.

The pattern needs to be addressed “before a catastrophe occurs,” it warned.

“Concerns about ‘panicking’ the public must not become an excuse for withholding information,” the call for investigation says. “In many cases, the fact that the information is alarming is precisely why it must be disclosed.”

The submission, filed on behalf of the B.C. Freedom of Information and Privacy Association, says that under provincial law, public bodies are required to act “without delay” in publicly disclosing information about any “risk of significant harm to the environment or to the health or safety of the public.”

Also….

And in 2008, the researchers say, the BC Centre for Disease Control and the Provincial Health Services Authority are alleged to have failed to promptly disclose at least two pieces of critical information about tick-borne Lyme disease.

Lyme disease is thought to be relatively rare in B.C. and is difficult to diagnose. It is caused by a bacteria transmitted by tick bites. It can have grave effects if not properly treated, but its symptoms often mimic or are masked by those from other serious disorders, creating multiple identification and treatment problems for health professionals and patients.

The UVic researchers say a key study conducted in 2008 and 2009 found that a substantial portion of Lyme disease cases in B.C. go unreported to provincial health authorities by doctors, despite legal obligations to report.

That study suggested that actual Lyme disease cases could be up to 25 times more numerous than previous official estimates. The finding was not released until 2011.

And provincial health authorities waited a year before releasing another key study on chronic Lyme disease in 2010, the submission says.

That study found that testing and treatment in B.C. were poor, that the actual level of infection in B.C. was unknown and that most medical doctors lacked adequate knowledge about the disease and its prevalence.

These findings were not released until 2011 -and only then in response to a freedom of information request, the researchers say.

“This information would have helped B.C. residents and doctors to educate themselves about the risks posed by Lyme disease, empowered people to take preventive measures to reduce their risks of contracting Lyme disease and contributed to an important discussion about changes to policy or law needed to grapple with the risks posed to public health,” the researchers wrote.

But it’s not just the provincial government that is failing to inform the public of potential health or other risks despite obligations to do so, the legal researchers say.

See full story here (nearly a full page):

http://www.vancouversun.com/touch/health/story.html?id=6737535

Map of Lyme disease risk in the U.S.
For three years, more than 80 tick hunters combed sites throughout much of the U.S. with corduroy cloths to trap the insects. They were on the lookout for the black legged tick Ixodes scapularis. It is the main carrier of the bacteria that cause Lyme disease.
This new map reflects their findings and pinpoints areas of the Eastern United States where humans have the highest risk of contracting Lyme disease.
So far in Canada, Lyme disease has become established in parts of southern and southeastern Quebec, southern and eastern Ontario, southeastern Manitoba, New Brunswick and Nova Scotia as well as much of southern British Columbia.
Source: American Journal of Tropical Medicine and Hygiene

http://www.cbc.ca/news/health/story/2012/02/02/lyme-disease-tick-map.html?cmp=rss

Jean-Luc Giroux- 26 years old, from Victoria BC- his journey with Lyme. This video takes you through it… Canada to US…highs n lows..WATCH IT..GOOD VIDEO…and Thankyou for it, Jean-Luc, very much!!

Another Canadian BC Lyme journey


This story is not going to be your average love story. This is a story of great pain, sickness, tolerance, patience, hope, faith, and triumph. Meet Justin and Christa, a couple that has grown stronger through very trying circumstances.

See full story and Video’s here:

http://www.squidoo.com/a-love-story-built-on-pain-strength-and-faith

Implement Recommendations Outlined in Schmidt Report 2010 Petition | GoPetition

 

By Pamela Fayerman, Vancouver Sun March 29, 2011

The B.C. Medical Journal report also raised serious questions about the diagnosis and treatment of Lyme disease.

Sixty-three per cent of doctors said they were unaware that a bulls-eye rash is the only symptom they need to see in order to make a clinical diagnosis of Lyme disease.

Such a rash means a prescription for antibiotics can be given without the need for laboratory testing.

But studies have shown that up to 65 per cent of those with Lyme disease may not develop a rash. In such cases, treatment might not be started unless there is a positive lab confirmation. And such testing — to detect antibodies — can’t be used until weeks after the initial infection.

Another report also says doctors lack knowledge about Lyme disease and that better testing is urgently needed.

Written by Provincial Health Services Authority official Brian Schmidt and presented to the provincial government in May 2010, it notes that many doctors are skeptical about chronic Lyme disease, partly because the symptoms are similar to other ailments like chronic fatigue syndrome and fibromyalgia.

Schmidt said the current state of diagnostic testing methods for Lyme disease is inadequate and recommends that B.C. “lead the nation” in developing new tests based on genetic sequencing. He also urged more education for doctors and for those who work outdoors

Read more: http://www.vancouversun.com/entertainment/topics/city/anaheim/Most+doctors+trained+diagnose+Lyme+disease/4518329/story.html

How the health care system has failed them. CHEK News Vancouver Island, BC Canada. Interview with Jay McQuhae regarding his daughter Marie battling Lyme Disease while they battle the road blocks in our healthcare system. After chartering a private jet they have now left Canada for her to be treated by a Lyme specialist in Northern California

See Video:

http://www.youtube.com/watch?v=lHsEMIdNZEk

This is video of spirochetes and biofilm found in infected ticks throughout BC from Dr. Kindree and Dr. Banergee from the BC CDC. This video was given to Dr. Murakami by Dr. Kindree.

Marie McQuhae Lyme Disease – savemarie@yahoo.com