Lyme Disease Halifax

Lyme Disease – Information on Lyme Disease- Life stories of Lyme disease

Browsing Posts in Ing’s Blog

http://m.capebretonpost.com/News/Local/2014-04-11/article-3685796/Woman-claims-health-protocols-putting-her-sons-health-at-risk/1

BILL NO. 46 (as introduced) 1st Session, 62nd General Assembly Nova Scotia 63 Elizabeth II, 2014 Private Member’s Bill Lyme Disease Strategy Act Tim Houston Pictou East First Reading: April 10, 2014 Second Reading: Third Reading:

An Act Respecting a Lyme Disease Strategy for Nova Scotia Be it enacted by the Governor and Assembly as follows: 1 This Act may be cited as the Lyme Disease Strategy Act. 2 In this Act, (a) “district health authority” means a district health authority within the meaning of the Health Authorities Act; (b) “Minister” means the Minister of Health and Wellness; (c) “Provincial strategy” means a Provincial strategy to address the challenges of the recognition and timely diagnosis and treatment of Lyme disease. 3 The Minister shall, within six months after this Act comes into force, convene a conference with stakeholders, including representatives of the medical community and patients’ groups, for the purpose of developing a comprehensive Provincial strategy that includes (a) the establishment of a Provincial medical surveillance program to use data collected by the Department of Health and Wellness and district health authorities to properly track incidence rates and the associated economic costs of Lyme disease; (b) the establishment of guidelines regarding the prevention, identification, treatment and management of Lyme disease, including a recommended Provincial standard of care that reflects current best practices for the treatment of Lyme disease; and (c) the creation and distribution of standardized educational materials related to Lyme disease, for use by any public health care provider within the Province, designed to increase Provincial awareness about the disease and enhance its prevention, identification, treatment and management. 4 The Minister shall prepare a report that sets out the Provincial strategy and publish the report on the Departmental website within one year after the conclusion of the conference referred to in Section 3. 5 The Minister shall, within 10 days of the publication of the report referred to in Section 4, table the report in the Assembly if the Assembly is then sitting or, where it is not then sitting, file the report with the Clerk of the Assembly. 6 The Minister shall (a) complete a review of the effectiveness of the Provincial strategy no later than five years after the day on which the report referred to in Section 4 is published on the Departmental website; and (b) within 10 days of the completion of the review, table a report on its findings in the Assembly if the Assembly is then sitting or, where it is not then sitting, file the report with the Clerk of the Assembly. 7 (1) The Governor in Council may make regulations respecting any matter or thing the Governor in Council considers necessary or advisable to effectively carry out the intent and purpose of this Act. (2) The exercise by the Governor in Council of the authority contained in subsection (1) is a regulation within the meaning of the Regulations Act. This page and its contents published by the Office of the Legislative Counsel, Nova Scotia House of Assembly, and © 2014 Cr

Ditto…..

20 comments

Thankyou so much for all your posts, very heart warming. I hope you all had a great Christmas and looking forward to a healthy and happy New Year. Thankyou Derek for this website and all the work you do to keep this going, I am very grateful. I never say Thankyou enough and you usually only hear me shrieking about all the spam viagra posts l0l.

I was very sick over Christmas and have been lacking in new posts. I thought I wouldn’t make it through Christmas day I was feeling so bad but today I’m feeling like Christmas 2011 was a rebirth for me. So much so I think I’m going to buy a Baby’s first Christmas 2011 ball~its significant. I’m deciding if I will do a blog on this, I would have to be so honest with it and not sure if that’s fair to the other Lymies. You know how bad with memory I am all the conversation came back to me at the time and I did take a moment to chuckle. :~] Looking forward to 2012 !!

Peace n Love, healing n whole … love ing XO

1 comment

“Courage and cheerfulness will not only carry you over the rough places in life, but will enable you to bring comfort and help to the weak-hearted and will console you in the sad hours”

There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something tomorrow.
Orison Swett Marden

On December 12/2012 Canlyme printed this story …
http://canlyme.com/2012/12/12/misinformation-sent-to-all-nova-scotia-mlas-and-mps-by-chief-medical-officer-of-nova-scotia-robert-strang/ regarding a letter that was sent out to ALL MP/MLA’s regarding Lyme disease in Nova Scotia .  It seems I am not the only one upset about this letter.  One of the lines I was most upset with, because it rang so true, was not in the original “Strang Letter” , it was in the rebuttal from The Canlyme website…..
“Canadian Infectious Disease doctors Canada wide have refused in writing to see any patient that did not pass that flawed protocol “.
That sentence directly applied to me, as I too could not be seen here in Nova Scotia by Infectious disease, and I also know of others. I also have it in writing,  not once, but twice  !!!!!  I decided to enquire about the contents of the letter (which would be used to educate the public and squash public fear) but it was more like pulling teeth.  I emailed all 52 constituents to see what they thought. The responses were varied, to say the least. What I received was anything from no to yes, through a third party,  to pretty much ….. you may as well take a hike.  It will take awhile to get these posted…. but here’s a small taste.
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MLA for Lunenburg West (endemic jurisdiction Lunenburg and Queens Co.)

He is Ministerial Assistant to the Department of Health and Wellness.

From: ns_hottie@hotmail.com
To: gary.ramey.mla@eastlink.ca
Subject: Re: Lyme disease in Nova Scotia
Date: Mon, 17 Dec 2012 23:57:25 -0300
Dec 17, 2012
This note is in regard to Dr. Strang /Chief Medical Office (DHW) letter regarding Lyme disease. This letter was sent out to all MLA/MP dated November 28, 2012 . Could you please confirm that your office has received this letter from him.
Thank you in advance,
Ingrid
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From: ingrid
Sent: Wednesday, December 19, 2012 10:35 AM
To: gary.ramey.mla@eastlink.ca
Dear Constituent,
I sent you an email two days ago and have not had a response yet. Do you have someone that answers emails from the people that elected you?  As an elected member I would expect at least that. The only question I had, at that time, was if you received the letter from Dr. Strang/Chief Medical Officer of Health regarding Lyme disease?  Lyme disease is a province wide issue. However, now I am very dismayed that I have not received any response …..PLEASE RESPOND!!
Sincerely Ingrid
—————————————————————————————————-
From: gary.ramey.mla@eastlink.ca
To: ns_hottie@hotmail.com
Subject: Re:
Date: Wed, 19 Dec 2012 14:35:54 -0400
Dear Mrs XXXXXX :
I apologize for not responding sooner as I thought this was a hoax. Let me explain why.  It is addressed to Dear Constituent. I am the MLA for Lunenburg West, although technically I suppose I am  my own constituent. I have no idea if you are even a constituent of mine as you have not identified your home community, and I respond, as much as possible, to my own constituents first.   I get many e-mails per day along with many phone calls.  I try to respond to everyone as soon as possible , but events at this time of year often take me out of the office, and I am a bit slower at getting back  As I indicated, I thought the bizarre salutation made this a hoax.  I answer all my own e-mails, as I am the elected representative, and as such I am the one who should and does respond.  I am not sure why a two day response window would cause you to  be dismayed, but in answer to your question, I did receive a letter from Dr. Strang, and I have referred your inquiry to his office
Best Wishes for a Happy Holiday Season.
Gary
—————————————————————————————————–
From: ingrid
Sent: Tuesday, January 01, 2013 3:26 PM
To: gary.ramey.mla@eastlink.ca
Subject: FW: LYME DISEASE/HOAX/STRANG LETTER
constituent – a member of a constituency; a citizen who is represented in a government by officials for whom he or she votes; “needs continued support by constituents to be re-elected”

Attention: RE: LYME DISEASE/HOAX/STRANG LETTER
Tuesday Janruary 01, 2013
Dear Mr. Gary Ramey MLA Lunenburg West,
HOAX ????
WOW… JUST WOW !!!!
Thankyou very much for your note and addressing my inappropriate verbatim and usage of the word ” constitiuent”. It absolutly astounds me that someone with part of your Bio. Premier Darryl Dexter’s Ministerial Assistant for the Department of Health and a former board memeber of Bonnie Lea farm (so eleqauntly-I might add) took a full paragraph to address. Were you trying to be rude, belittling or were you just trying to avoid this issue of Lyme disease and the “letter” all together?
While I do not live in “YOUR” endemic area, Lyme disease is a serious Province wide issue!!!!
As being our Premier’s Ministerial Assistant I would assume that you would have been one of the first to have been privy to the letter “Lyme disease in Nova Scotia” by our Chief Medical Officer-Dr. Robert Strang, before it was sent out. I’m perplexed as to why you felt the need to address the “bizzare” salutation in great detail, rather than the important issue at hand. Why did you forward my inquiry to Dr. Strang’s office? Our Premier has first hand knowledge of the issues with Lyme disease in this province, have you spoke to him regarding Lyme disease? My question was to you Mr. Ramey, more importantly, what did you think of the letter?
Sincerely,
Ingrid
———————————————————————————————————————-
From: gary.ramey.mla@eastlink.ca
To: ns_hottie@hotmail.com
Subject: Re:
Date: Wed, 19 Dec 2012 14:35:54 -0400
Thank-you for your email.  I want you to know that my response to you was in no way meant to be condescending, belittling, or rude.  It is not in my nature to treat others this way, and conversely I do not enjoy being treated that way myself.  I reiterate that I thought because of the salutation that this e-mail was a hoax.  I also recollect there was something about the return e-mail address that I found strange, but I would have to go back and look at the original e-mail to check on what that was.
In any event, my role as Ministerial Assistant does not make me privy to discussions on health care policy in Nova Scotia on a regular basis, nor, in my role as Ministerial Assistant, am I consistently informed on all the issues that are the purview of the Department of Health and Wellness.  Policy discussions and health care practices are in the arena of the minister in consultation with experts in their respective fields, of which Dr. Strang would be one. In 2009, when our government was elected, we merged the Department of Health and the Department of Wellness together to form one.  As a result, the minister’s role was expanded due to the formation of of one ministry from two.  The role of the Ministerial Assistant is similar to that of a Parliamentary Secretary to a federal cabinet minister.  This means I often appear on behalf of the minister at an event, or deliver a speech on his behalf.  My role is not to formulate policy, or to be consulted or briefed on the myriad of health-related issues confronting the minister.  That’s his defined role.
I recognize that Lyme Disease is a health issue in our province and, specifically in my area of the province,—–  Lunenburg and Queens Counties. I read the letter from Dr. Strang and felt it was thoughtful, comprehensive, and clear.  I know this issue continues to receive attention at the department.  Not being an expert in this field, nor having a role to play that would be applicable, I forwarded your concerns to the individuals in government who would be most likely to professionally address this issue.  It is my duty to do this, as that is my role as an MLA.
I hope this clarifies my position on this matter.
Happy New Year
Warmest regards,
Gary
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From: Lyme Ing <onesicklymie.realitycheck4u@yahoo.com>
To: “gary.ramey.mla@eastlink.ca” <gary.ramey.mla@eastlink.ca>
Sent: Tuesday, January 15, 2013 10:40 PM
Subject: LYME DISEASE IN NOVA SCOTIA
RE: LYME DISEASE IN NOVA SCOTIA
Dear Mr. Gary Ramey MLA Lunenburg West:
Thank-you very much for your email. The orignal intention of this email was to find out if you as an “MLA” had received the letter “Lyme disease in Nova Scotia” by Dr. Strang/Chief Medical Officer of Health dated November 28/2012 and WHEN ? It seems that as of today’s date not all MP/MLA’s have received it (some have received it through a third party). When did you recieve this letter directly from Dr. Strang’s office is the question? Please do not forward this question to Dr. Strang’s office (I have his email) as this question was not posed to him it was directed at you soley as your role as an MLA with Lunenburg being an endemic area, which is in your arena as an MLA.
Please note:
I have changed my email address from  ns_hottie@hotmail.com (the email address you found strange)  to  onesicklymie.realitycheck4U@yahoo.com maybe we can stay focused on the task at hand , and not skirt the issue.
Happy New Year,
Sincerely,
Ingrid
**** Still awaiting response…!!! ****
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Dartmouth East-Andrew Younger MLA

From: ns_hottie@hotmail.com
Subject: RE: Lyme disease in Nova Scotia
Date: Tue, 18 Dec 2012 00:05:22 -0300
Dec 17, 2012
This note is in regard to Dr. Strang /Chief Medical Office (DHW) letter regarding Lyme disease. This letter was sent out to all MLA/MP dated November 28, 2012 . Could you please confirm that your office has received this letter from him.
Thank you in advance,
Ingrid
————————————————————————————————-
From: ingrid (ns_hottie@hotmail.com]
Sent: December-18-12 1:29 PM
To: Office of Andrew Younger MLA
Subject: RE: Lyme disease in Nova Scotia
Do you have someone that responds to emails?
————————————————————————————————
From: info@andrewyounger.ca
To: ns_hottie@hotmail.com
Subject: RE: Lyme disease in Nova Scotia
Date: Tue, 18 Dec 2012 18:43:17 +0000
Yes Ms. XXXXXX, I respond to emails on behalf of Andrew’s office.
However, I wanted to check with Andrew about a response to your query.
This constituency office has never received any missive from Dr. Strang regarding Lyme disease, nor any other topic in recent memory. Neither has Andrew’s Liberal Party office (the caucus office) in downtown Halifax.
At this point in time, we have yet to find an MLA who is in receipt of this message from Dr. Strang regarding Lyme disease.
What we have received, is an email “in response to” Dr. Strang’s mystery message stating that Dr. Strang’s letter contains “some serious misinformation”. That email has been forwarded to Andrew, via this office.
We hope that answers your question.
Regards,
Patti Tabor
_______________________________________
Patti Tabor | Constituency Assistant
Office of Andrew Younger
MLA – Dartmouth East
73 Tacoma Drive, Suite 600 |
Dartmouth | Nova Scotia | B2W 3Y6
T: 902.406.4420 | F: 902.406.4421 | E: info@andrewyounger.ca
——————————————————————————————–

Vicki Conrad MLA Queens

Ingrid, on behalf of Vicki Conrad, thank you for your email and my apologies for not responding earlier.  We have received the letter from Dr. Strang and we have been advised that Dr. Strang will be addressed the inquiry in the new year.
Seasons’s Greetings & Happy New Year!
Judi Milne, Constituency Assistant
We Build Ships – check it out: www.shipsstarthere.ca
VICKI CONRAD, MLA Queens
Ministerial Assistant to Transportation & Infrastructure & Caucus Chair
PO Box 430, 43 Carten St., Liverpool, NS  B0T 1K0
902-354-5203, fax 1-902-354-5247, toll free 1-888-354-5203
www.vickiconrad.ca
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As a footnote (from Canlyme) :

Local MLAs hear requests for Lyme disease vigilance

NEW GLASGOW – Pictou County’s three MLAs and several county councilors got educated about Lyme disease from those suffering from the disease. They also received a long list of items the delegation wants instituted into Nova Scotia’s detection and treatment of the disease during a meeting on Monday at Justice Minister Ross Landry’s Pictou Centre constituency office. “We did our best,” delegation member Alice Lees said. “There are strong intentions and they’ve information that will be helpful.” Besides Landry, Energy and Natural Resources Minister Charlie Parker and Pictou East MLA Clarrie MacKinnon, municipal councilors in attendance included Deputy Warden Andy Thompson, Sally Fraser, Debi Wadden and Jamie Davidson. “We know Lyme disease is a serious and real problem,” Landry said. “The big thing is getting the medical and health communities and the public educated. We met to help assure that various departments are aware of this.” The delegation members want the Medical Act of Nova Scotia updated to ensure those with Lyme disease receive the same guarantee former Health Minister Maureen MacDonald asserted “that all Nova Scotians receive the best possible care from highly qualified and trained doctors.”


1 comment

written by Dr. C. Ben Boucher, BSC, MD

What has happened over the past 20 years in the United States, and for a shorter time in Canada, regarding Lyme disease reminds me of what I have experienced in both wellness and chelation therapy. The hesitancy to diagnose and treat, the development of overly strict guidelines, and the intimidation of those who who suspect and would like to treat infections is like déjà vu.

This presentation is intended to inform the public, physicians and media about what I have learned regarding tick-borne diseases. My education has come from articles, books, a workshop by ACAM, and a conference by the International Lyme and Associated Diseases Society (ILADS). More importantly, my education has resulted from listening in great detail to many patients whose lives have been affected by these infections

Read more here:

http://thewellnesscentre.com/PressReleases.aspx

Well its August 11, 2010 and I am on route to see my first Lyme Literate Doctor. I was bit in July of 2008, removed the tick from the crater… it had now bore into my arm and I also had the tell tale bulls-eye rash. However the Elisa test came back negative and based on that … the last four Doctor’s dismissed my symptoms (over 50) and did not treat me.

So two years into this nightmare and I am finally on route. I didn’t sleep well…and I lay awake most of the night… wondering if I should write a
” If I die during treatment… I will not hold you responsible letter” to take with me… I decide against it…but would in a heartbeat.  The drive to the Doctor’s is 3.5 hours away. Exhausted already and emotionally drained I start this journey, it’s 6:30 am.  Thank You Wanda for letting me use your car.  (I can’t say Thanks enough)

I had great confidence in my new Doctor, Dr. Ben Boucher.  I had heard many good things about him from other Nova Scotian’s seeing him.  I was sure he would be able to evaluate me correctly with or without a positive Elisa test.  Surely, just in my spacey Lyme look alone.  However did wish on the way up I had one visible symptom that could prove to him, and so he could confirm to me, that I really had this. I got sick right after the bite, been sick since and had the rash.  I guess you have to be careful for what you wish for.  By the time I arrived at his office… my knees and ankles were full blown swollen and red. (Chronic Lyme Arthritis) I’m sure my Mom was trying to answer my prayers, Mom’s almost never fail.           

 Good I thought he will be able to see this. I only broke into full blown tears once on my way up, when the song “Sarah” by Rascall Flats came on.  I get out of the car behind the office in the parking lot, try to stretch my legs out so they will get me in the office.  I noticed a few cars in the parking lot…but one stuck out. It was a rather nice vehicle, (not over the top or anything)  I guessed it was my Doctors. It had a license plate that was a Canadian flag with a US flag sheen overlay on top of it.  Already emotionally drained I started to sob, tears just streaming down. I thought about my US Lymie friends that I first connected with on facebook, a border separates us, but we are all the same. We all suffer, hurt, and hope together. I really dont know how I would have gotten through this far without them.  When all (lOl @ all)I thought I had was Lyme Disease and totally clueless about much of it. And once I was complaining about my splinntering tibia’s and intensely sore soles that hurt to put weight on, one of these knowledgable souls directed me to have a look at the Bartonella symptoms. I have also connected with many Maritimers and other Canadians who are going through the exact same thing, sadly.  The names of all these people just went through my head…sickened that I could rhyme off 50 names no problem. Note: I have over 400 people with Lyme Disease on my facebook, and could easily just keep adding more and more.

I’m wondering if this Doctor could see me standing there doing this from one of the windows. He must think I have totally lost it. I re-open the door to the now locked car because I have to get myself together before I go in there. I open the door, set my glasses on the seat, wipe my eyes and then the Doctor comes out with a file. I thought great I’m busted he seen me.  He”s coming to get me! He called another patient that was also getting out of their car and called them by name and says your next.  I thought, I heard of Nova Scotia hospitality but this is surreal.  I stood there with my mouth open, stunned ! He must have noticed … he says “this doesn’t happen often .. I know these people”…and he kind of laughed and I did to. Anyway… I just wanted to get back to this license plate that had me so fixated. And I did for another couple of minutes. Then realized I had locked my glasses in the car.

I make my way into the office (I was in the waiting room when he called me in …lOl) Nothing stuffy about this guy…he introduced me with his first name.  I felt immediatly at ease.  On the sheet I had to fill out before hand, I had to check off what symptoms I had.  There is about 8 pages to this… full pages.. many, many symptoms with Lyme Disease and the nasty co-infections of Bartonella and Babasia.  I had asked other Dr.s to do this…to go over the symptom list that I downloaded from the ILADS site.  So I could go from head (which was also tender) to toes.  There is no way I could bluff having this (who would want to)…with all these symptoms… and remember when and how long I had that.. no way I could remember all this. Immediatly I showed him my legs. Look-Proof !! He wasnt so concerned with what was on the outside … he was more concerned with what was going on .. on the inside… and I knew I had the right Doctor.  I have not felt like I was under good care until now in over two years.  He diagnosed me with Lyme Disease and Bartonella… not sure on the Babasia the meds I will be taking will worsen the symptoms…we’ll find out then.  Some people are devastated to hear they have this dreadful disease … I only felt relief.  I have finally been diagnosed.  I have found a Doctor that Nova Scotia is so lucky to have. If it were not for him, I would have to go the U.S for treatment. I would never in a million years be able to do this…not a single doubt in my mind…not one !!! He risks his license to treat patients as the CDC follows the IDSA guidelines… I am so overcome with emotion that he would do this for little ole me.

At the end of my appointment, he says “Do you have any questions?”  I said “Oh ya about 40″… I also have the stunned off in space lymie look. He says “Did you forget them all?’ I said “yes”. He said “OK I’ll see you back here next appointment.” He totally understood!!!

I leave feeling incredibly blessed and with a new sense of hope.

Bless you, Dr. Boucher, Bless you !!!!! 

Bless us all…. ing XO